Family caregiver questions: answers and where to start
Questions that come up in families
You might hear a new term at a doctor's appointment, then find yourself trying to explain it to your siblings that evening. We've gathered a few common questions here, with links to our longer articles. These are general introductions, not medical or legal advice for your family.
What is a health care proxy?
A health care proxy is a legal document naming the person who will make health care decisions for a patient who can't make them. As a family caregiver, you might be named as the proxy for a parent or spouse, and you may want to choose one for yourself, too. Our article about choosing a health care proxy looks at the role and what to think about when choosing that person.
What is an advance directive?
An advance directive records choices about future care, but documents like this don't work the same way everywhere. Our Massachusetts advance directive article explains some of the terms to discuss with your own care team and legal adviser.
Do I need an advance directive?
That depends on your circumstances. Read our Massachusetts advance directive article as a starting point, then ask your care team and legal adviser which documents you should consider.
What is a MOLST?
MOLST stands for Medical Orders for Life-Sustaining Treatment. These medical orders are different from naming a health care proxy. Our Massachusetts advance directive article introduces the distinction, and your clinician can explain which forms are suitable for your specific situation.
Doesn't my family already know what I want?
They may know you well and still be unsure what you'd want in a medical emergency. Our article, "My family knows what I want" is not a plan, explains why a conversation about wishes and how to record them matters.
Is this only for older people?
Questions about future care can come up at different stages of adult life. Our article, End-of-life planning isn't just for the elderly, looks at why age alone isn't the reason to start talking.
How can I help a parent in the hospital?
Keep a note of your questions and ask the care team to explain what happens next. Our free hospital guide walks you through what to expect and what to ask. Our More Resources page has more information for family caregivers, and a call with Beth can focus on what you're managing and the help you need.
What kind of support can I get?
Every family caregiver needs support, and it looks a little different for each of us. You can work one to one with Beth, have care-planning conversations with Sarah, or join The Caregiving Circle™, our weekly online group. The Individuals & Families page explains the differences, so you can decide who you'd like to speak with.
Who should I call first?
Book a complimentary 10-minute consultation with Beth for practical or emotional caregiving questions, or with Sarah for health care choices and end-of-life planning. Tell us about what's happening in your family and what you'd like to talk through.
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