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The more you know

the better you can help

More resources for family caregivers

Help with the basics

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Getting started​  

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Getting help in an emergency

  • Call 988, National Suicide Prevention Lifeline — If you are in suicidal crisis or emotional distress, call, text, or chat in multiple languages, 24 hours a day, 7 days a week.
    https://988lifeline.org/

  • Call 1-866-3-HUNGRY (1-866-348-6479) USDA National Hunger Hotline — Call Monday through Friday, 7 a.m. to 10 p.m. Eastern time for help finding food in an emergency. Or call 1-877-8-HAMBRE (1-877-842-6273).
    https://www.fns.usda.gov/national-hunger-clearinghouse

  • Call 211, United Way — Call 211 or visit the website to find local assistance with immediate needs, from mental health to getting food to caregiving to recovering after a disaster.
    https://www.211.org/

  • USA.gov — Find out how to get government help with food, housing, utilities, health care, phone and internet service, Social Security, death benefits and more.
    https://www.usa.gov/benefits
     

​​Help with finances

  

Getting paid to care for a family member

 

Finding low-cost medical care

  • Medical clinics explained — You may not have to pay the full cost of care at a medical clinic.
     https://www.healthline.com/find-care/articles/articles/what-is-a-medical-clinic

  • Ten types of medical/health clinics explained — Find details on mental health, primary care, specialized, sexual health, addiction, community health center, retail, rural, dialysis, and mobile clinics. Includes links to search tools to find low- or no-cost clinics in your area.
    https://www.healthline.com/health/types-of-health-clinics

 

Finding low-cost medications

  • GoodRx — Get discounts on medications for common conditions, even if you have insurance. You may be able to get short-term refills with a telehealth visit you set up through this site.
    https://www.goodrx.com/

  • CostPlus — Get discounts on medications for common conditions, even if you have insurance. Have your prescriber send a new prescription, and your medications will be delivered directly to you.
    https://costplusdrugs.com/
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Help at home

  

Finding help with hands-on care

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Finding local services and resources

The types of services that can help family caregivers manage care at home include these:

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  • Nursing care, also known as home health care, for giving medications, cleaning wounds, and more

  • Home care for non-nursing tasks such as household chores, errands, companionship, personal care, and medication reminders

  • Physical therapy for help with movement, occupational therapy for help with performing daily activities, and speech therapy for help with communication or swallowing​

  • Care management/case management for help understanding your options and handling many organizational and administrative tasks for you

  • Geriatric/aging case management for help navigating the healthcare system, focused on older adults

 

To find those types of services near you (and services such as delivered meals, respite, transportation, adult day care, senior centers, and emotional and spiritual support), visit these websites:

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Understanding Medicaid waivers

  • Medicaidwaiver.org — Learn how Medicaid can help eligible people receive long-term care at home or in the community rather than in a nursing home or hospital. 
    http://medicaidwaiver.org/
     

Ensuring safety

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Finding information on family caregiving skills, products, and support

​​Help with nursing homes and hospitals

  

​Finding a local nursing home

Managing a hospital stay

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Managing palliative care

​​Help with the end of life
 

Managing hospice and the end of life

  

  • Caregiving Pathways — Before a care plan becomes an end-of-life plan, ask about our family caregiver guide to managing the end of life. 
    https://www.caregivingpathways.com/individualsandfamilies

  • Medicare.gov — Learn how hospice care works. It's free and it can improve quality of life and length of life. For someone expected to live for 6 months or less, you get a dedicated team of doctors and nurses on call 24/7, counselors (for caregivers, too), therapists, aides, and more at no cost to you. You can also get free medication, equipment, and medical supplies.
    https://www.medicare.gov/what-medicare-covers/what-part-a-covers/how-hospice-works

  • The Conversation Project — See the Conversation Starter Kit and other tools to help your family begin difficult conversations about the end of life. 
    https://theconversationproject.org/

  • International End of Life Doula Association — If you’d like help with an end-of-life vigil, use the registry on this site to locate an end-of-life doula. 
    https://www.inelda.org/find-doula/
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​​Help with Medicare and Medicaid 

   

Managing Medicare and Medicaid

​Help with logistics and stress

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Using online tools to help coordinate information and tasks

  • Caring Bridge — This site acts as a central coordination hub for you and your family and friends. 
    https://www.caringbridge.org/

  • Doodle — Scheduling family meetings is so easy with this site. 
    https://doodle.com/

  • Lotsa Helping Hands — Set up a Help Calendar and send the link to people who ask how they can help. You can list things like providing a family meal, giving a ride to a doctor appointment, or scheduling a visiting time. 
    https://lotsahelpinghands.com/

  • eCare21 — Long-distance caregivers can use this app and a wearable smart device to monitor a loved one’s heart rate, glucose levels, and other health data.
    https://ecare21.com/

  • Medisafe — Use this app to monitor medications, see side effects to look out for, and more. Doctors can use the app to connect with patients. 
    https://medisafe.com/
     

Managing family caregiver stress

Help with health conditions 

   

Information about specific conditions

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Black, Indigenous, and People of Color (BIPOC) Mental Health and Substance Use

 

COVID-19 resources

Help for veterans
  

Additional resources
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